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Saijen SilverWolf Profile
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posticon Well, it's gonna be busy the rest of the month... UGH


It's been one of those [sign in to see URL] it's not going to get much better till next [sign in to see URL] then only depending on what is found, if anything, with all the tests I'm having done.

Let me get you up to speed.
Today, I had a 10 am appointment to get a temporary crown and impressions done for the permanent crown. I will get the permanent one on the 22nd of this month.
You already know about the sleep study on the 16th and 17th. The morning of the 16th, I now also have a gastrointestinal emptying study scheduled. I'm not sure what that is, exactly. I'll find out more about that tomorrow when I go for my upper GI CT.
On the 24th, I have a colonoscopy and endoscopy scheduled at 7:30 am.
In the meantime, I have to do a stool collection for the Gastroenterologist as well as another one for my nurse [sign in to see URL] total of 5 small jars and 2 larger ones. I also have to have more blood work done. Not totally sure what all is being done there.
The Gastro doc told me to get the nurse practitioner to do a lab to check my vitamin D level. See if I'm lacking there to possibly explain the fatigue issue I'm having.
Depending on what is, or is not found, during all of these tests and labs things may get kind of 'hairy'. If nothing is found, then we'll be back to square one. If they do find something, the 'cure' will depend, of course, on what was found. The Gastro will do a biopsy of my colon, regardless, and if there are any polyps, she'll go ahead and remove those. If my nausea and vomiting is due to the fact that my stomach is not processing what I eat, then I think she said there is a medication they can give me for that. The 'emptying' test I mentioned above is the test to see if my system is processing food properly. Also, if it's not, it may actually be due to my [sign in to see URL] can cause my stomach to literally have periods of [sign in to see URL] can cause nausea and all that good stuff.

I'm sure there are things I'm [sign in to see URL] I'm flat out exhausted. After spending over an hour in the dentist's chair this morning, then having to kill time till 3 for the Gastro appt, then not getting out of there till after 5 [sign in to see URL]'m worn out.

I won't respond to anymore posts tonight. I'll try to get to them all after my test in the morning.
As soon as I find out results, I'll let y'all know what's going on or not going on.

Thanks for always being here and 'listening' and not seeming to mind that I'm doing a great deal of whining right now. emoticon

---
Blessed Be,
~*~ Saijen ~*~

~~*~~ .~~*~~
4/10/2009, 12:46 am Link to this post Send Email to Saijen SilverWolf   Send PM to Saijen SilverWolf Yahoo
 
Firlefanz Profile
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Re: Well, it's gonna be busy the rest of the month... UGH


 emoticon

Just take it easy, Saijen. Get your rest, that's more important than posting here.

*love and healing*

---
- Firlefanz


4/10/2009, 8:40 am Link to this post Send Email to Firlefanz   Send PM to Firlefanz Blog
 
Fenyx Profile
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Re: Well, it's gonna be busy the rest of the month... UGH


Just a quick checking in, but DANG! Saijen - leave some doctor time for other people. YOU need to feel good, at least some/most of the time.

I wish you well on at least finding something fixable with all these tests, and not just more poking and proding and no news.
(or at least know what you don't have).

Take as good a care as you can -
Fenyx

---


A Porch Lover
4/10/2009, 5:43 pm Link to this post Send Email to Fenyx   Send PM to Fenyx
 
PerpetuallyCurious Profile
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Re: Well, it's gonna be busy the rest of the month... UGH


Yikes, I'm sorry emoticon

4/10/2009, 6:20 pm Link to this post Send Email to PerpetuallyCurious   Send PM to PerpetuallyCurious
 
Saijen SilverWolf Profile
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Re: Well, it's gonna be busy the rest of the month... UGH


Today has actually been a pretty decent day, despite having to drink that Barium stuff, having a needle in my arm and dodging tornados.

I went for the Upper GI CT this morning. Starting at about 8:30, I had to begin drinking Barium. I had one bottle at 8:30, one bottle at 9:15 and the last bottle at 10. Got to the hospital and up to the procedure room, and naturally this is a with and without contrast test, so they had to get an IV port [sign in to see URL] I have horrible veins. They managed on the second stick to get a good [sign in to see URL], off we went for the test. It didn't take very long at [sign in to see URL] all of 15 minutes once they got me all IV'd up.
I left there, grabbed me and DH some lunch to bring home. We ate, then messed around the house for a little [sign in to see URL] some housework and DH moved furniture around in our bedroom. He then decided he wanted to go to Walmart to get some topsoil, humus and potting soil so we could get the Astibles planted. We got that, and a few other [sign in to see URL] home and I got grass and wild onions dug up out of the Faerie Garden and the soil prepped for 4 of the Astibles. I have one of [sign in to see URL], peach, white and lavender, planted in the Faerie Garden. DH planted 3 under another tree, then we planted 3 along one side of the house. The remaining 6 are all planted in front of the little fence that fences off the water fountain. That ended up being 2 lavender, 2 white and 2 red. We managed to get all of those in the ground before some really nasty weather hit. Neither of us had a clue we were under a tornado warning. I actually found out when a friend in Florida called to be sure we were OK.

For supper, I fixed some of that new Meals For Two stuff that you steam in the bag in your microwave. It takes 10 minutes. I got 2 bags, and fixed one for each of [sign in to see URL] that was all we ate for supper. Really pretty good stuff. I got a chicken one that had carrots, green beans, tomatos and asparagus in it, as well as rotini pasta, all in a garlic sauce. Made a perfect [sign in to see URL] filling and didn't take forever, and the only dishes we messed up were the bowls I put it in after it was steamed.

Just before DH headed off to bed, I finished cleaning up some in our bedroom. Got our bed all cleaned off.
I have a lot of shoes, and DH HATES it when I line them up under the bed, so, I found a thing at Walmart that you put shoes in to slide under your bed or under a dresser if there is room. It holds up to 12 pairs of shoes, has a clear top and zips up to keep dust and dirt off your [sign in to see URL] keeps them all tidy. I got the shoes into that, and it slid perfectly under the chifferobe. Now, my shoes are contained, and not just piled up helter-skelter.
For some reason, in winter, we have one wall in our room that gets [sign in to see URL] behind the head of the bed and behind the night stands. I got that all cleaned off earlier [sign in to see URL] wall wiped down with a disinfectant and such. DH swept and mopped the kitchen and diningroom floors for me and did what few dishes were sitting in the sink. I think tomorrow, if I'm feeling up to it, I may see about stripping our bed and doing some laundry to hang out on the line. Blankets and sheets and such.

Sunday, barring any problems, me, DH, his brother and family will be going up to see my FiL and SiLs

Monday, I will go get the bloodwork done that I mentioned in the previous post, and then if I'm feeling OK, I am going to the town where my youngest daughter lives to take her a college catalog and application, then she and I want to go to lunch, and possibly to poke around in the shops downtown.
She has just applied for a better position where she works (at Lowes). Right now, she handles returns and does customer service and is working about 30-32 hours a week. The new position would be doing returns of damaged goods from the manufacturer and getting the money back from the manufacturers. It would be a full time (40 hours) job, with a pay increase. Only thing [sign in to see URL] she's wanting to go back to school, she'd have to do night classes. Of [sign in to see URL] are no children there, so it wouldn't be that huge of an issue.

I [sign in to see URL]'m rambling ..sorry 'bout that.

Back to [sign in to see URL] should know something about labwork that was done a few days ago no later than the middle of next [sign in to see URL] likely sooner than that. I won't know the results of today's CT for probably about a week. Thankfully, they scheduled it for when the Radiologist was at the hospital so it wouldn't have to be sent off to be read. Our hospital is so small, the radiologist only comes once a week from a larger hospital in a close-by town.
[sign in to see URL] managed to get the fun, wonderful stool stuff done this morning. However, I could only turn one of them in because the lab for the other one as closed [sign in to see URL] with it being Good Friday and [sign in to see URL], I will have to get a whole new "kit" and do it again. That will be on Monday also... barring any problems. Not sure how long it will take to get those results back. Especially since it's 2 different doctor's requests, and 2 different labs. [sign in to see URL] fun.

At any rate, I am glad that today was one of the good days and I was able to get outside and get my flowers planted. It was so nice out, temperature [sign in to see URL] perfect day to be outdoors with my hands in the mud planting. emoticon

---
Blessed Be,
~*~ Saijen ~*~

~~*~~ .~~*~~
4/11/2009, 4:12 am Link to this post Send Email to Saijen SilverWolf   Send PM to Saijen SilverWolf Yahoo
 
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Re: Well, it's gonna be busy the rest of the month... UGH


Wow, you got a lot done! Yay for good days!

I'm glad that whatever was around you didn't hit - tornado dodging indeed! emoticon

Hope you'll have more good days, now that it's getting a good temperature for being outside and soaking up some of that sun.

*hugs*

---
- Firlefanz


4/11/2009, 7:00 am Link to this post Send Email to Firlefanz   Send PM to Firlefanz Blog
 
Saijen SilverWolf Profile
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Re: Well, it's gonna be busy the rest of the month... UGH


emoticon Thanks Firle

I talked to my mother, sister and father all [sign in to see URL] all live closer to where a good deal of the tornadic activity was (so does Fenyx), and they all are telling me about things they heard on the news or heard from friends in the area. I'm really glad we were able to dodge all of that nastiness.

[sign in to see URL] is some things I've not yet posted about what's going on with my health issues:
My Gastro doc asked me if I had ever been tested for Celiac disease. No, I haven't, but my sister had, and she does have Celiac. It is a hereditary [sign in to see URL], who knows, that may be part of my problem, but my symptoms are closer to those of some other health concerns, such as an [sign in to see URL] infection that refuses to get better, and/or Crohn's Disease.
What prompted me to do some digging in [sign in to see URL] Gastro gave me some samples of a pill called Xifaxan. As I read the info out of the package, it is a medication used to treat noninvasive strains of [sign in to see URL].
The symptoms that are the closest to what I have going on:
**Enteroinvasive [sign in to see URL]: Blood or mucus in watery stool (mine is the mucu), tenesmus (I still have to look that one up), fever and cramping.
**Enteroaggregative [sign in to see URL]: Sudden and recurrant bouts of diarrhea.
**Enterpathogenic [sign in to see URL]: Diarrhea that contains mucus, vomiting, fever, life-threatening dehydration.
Keep in mind that not only do I live on a cattle farm, we have well water. On Monday, if the landlord is here, I am going to request that he have the proper people come out and do a test on our well water.

For the Crohn's disease, I saw a commercial not long ago about a medication used to treat it, so I thought I'd check it out online to see what the symptoms are. The symptoms are: Persistant diarrhea, Abdominal pain and/or cramping, Fever (I've been running a low grade one through this), and Fatigue.

For Celiac Disease: Diarrhea, Fatty stools (not sure what that means), Constipation (when not having diarrhea, I have this), Anemia (don't have), Weight loss, Osteoperosis (not sure if I have it or not), Itchy-bumpy skin rash (don't have), Vitamin deficiencies (not sure), Inflamitory bowel disease (not sure), Inflamitory bowel disorder (not sure).

While talking to my dad, he brought up something I should have thought about. While it may not be causing the current problems or symptoms, it could have been the catalyst.
From December of 1981 till November of 1997, the house I lived in had the unfortunate problem of having high voltage power lines directly over the back yard. As a matter of fact, they ran through the middle of our property. You couldn't do out barefoot or without socks and shoes or you'd feel like your ankles were being stung by millions of bees or ants. You could take a flourescent light bulb, hold it in your hand and walk outside, and the bulb would light up. Touch anything metal and get the snot shocked out of you. I could put my hand on the top of my children's heads and literally FEEL them vibrating from the amount of electricity being generated.
One of the local news stations did a series of stories using my backyard and various other areas of those power lines to do a week long set of stories about the problems of living near or under that kind of health threat. I think I am going to get in touch with that station and see if I can get someone to go into their archives and get that series out and send me a copy.
My dad just read a book not long about about high voltage power lines and health problems. He's going to send me the book next week. I will read it, making notes as I go, and take the notes with me to my doctor's visits. I know that isn't what is making me sick right now, but it could have caused an extreme immune deficiency problem and is allowing the health problems to attack me now.
I have done some online reading about this as well and I printed out what I had read. You may be surprised. I will post some of the issues that can come from not just high voltage power lines, but the seemingly harmless powerlines in almost every neighborhood in America. I will post that in Hot Topics.
It sure could explain a great many things!!!

I bought some One-A-Day Energy tablets yesterday, and started taking them. I'm hoping that perhaps they will help some.
I carry with me a paper with all of my medications listed (makes it easier than writing them all down every time I go to a new [sign in to see URL] just have them make a copy for my file) and on the back, I listed that suppliment, and EVERYTHING that is in them and the MG or MCG of each thing. This way, if something new comes up, they may be able to either attribute it to the suppliment, or use that info to see that the suppliment isn't the culprit of the newer symptoms, should any arise.

I am doing my very best to make an effort to be as informative as I can, not only for my sake, but to help the doctors, and, who [sign in to see URL] somewhere down the line, help someone else that's having the same issues and hadn't been able to find someone to work on their behalf to find the problem ( a doctor or such).

I had honestly considered starting another message board for people in the same situation I am [sign in to see URL] necessarily with the same symptoms, but that are also having problems health-wise and are going through doctor after doctor seeking some answers and possible help. One never knows if someone else has already "been there done that" and could help guide someone else that doesn't know what questions to ask, or information to [sign in to see URL] what kind of tests or doctors they need to be checking in to. Just not sure I need to do this right now while in the throws of my own searching. Y'all have any opinions on [sign in to see URL] you think I should wait to add that kind of message board, or go ahead with it in hopes of not only helping myself, but potentially others????? Y'all's advice means a great deal to me. Keep in mind, [sign in to see URL] the Porch is my [sign in to see URL] first love and the time I am able to spend here wouldn't become any less should I do another message board. The other board would become a secondary [sign in to see URL] this board. [sign in to see URL] to y'all think????

---
Blessed Be,
~*~ Saijen ~*~

~~*~~ .~~*~~
4/11/2009, 10:38 pm Link to this post Send Email to Saijen SilverWolf   Send PM to Saijen SilverWolf Yahoo
 
Saijen SilverWolf Profile
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Re: Well, it's gonna be busy the rest of the month... UGH


I don't know if the good days are something my system is allowing, or if they are the product of the sample medication the Gastro gave [sign in to see URL] one that treats the noninvasive [sign in to see URL] infection. I was feeling pretty decent before I started them, but I've not had any episodes at all of any twinges of [sign in to see URL], I'm not sure what's happening. I keep waiting to see if I'm actually better, or if I'm in the 'eye of the storm' here. It's really hard to know.

I am working very hard to keep a highly positive attitude that I will wake up feeling good, energized and ready to take on the day. I have to really watch allowing the negative thoughts to creep in. When I begin to wonder.."[sign in to see URL], I've had 3-4 good [sign in to see URL]'s about time for the !@#$ to hit the fan [sign in to see URL] when"....I do an [sign in to see URL] like "You're not GOING to have the bottom fall [sign in to see URL]'ll wake up in the morning feeling even better than you did this morning, and you'll feel good all day." It's been extremely trying, I tell ya. I know that sometimes our thoughts manifest into [sign in to see URL] when it comes to our health, state of mind, etc.
I'm not doing the actual tapping right now (EFT), but I am using those [sign in to see URL]'s OK to be sick, but it's even more OK to be well. Things like that.

I have several tests coming up this [sign in to see URL] Gastro emptying study/test (NO clue what that entails), the double sleep study, lab work...
The study/test and double sleep study are this Thursday and Friday. I have a doctor appt. on the 15th. It's a follow-up and hopefully she'll have my lab results back. The 22nd is the day I go get my permanent crown put in, the 24th is the endoscopy and colonoscopy. The 22nd is an appt. with my pain doc. which I just noticed. I may have to reschedule the appt. with the dentist. I've not seen my pain doc in 3 months. I think he needs to be made aware of what's going on. Too many [sign in to see URL] many appointments. I'm getting lost!!!

[sign in to see URL], it's almost 11:30. I am going to attempt to go to bed.

I hope everyone had a good day today!! emoticon

---
Blessed Be,
~*~ Saijen ~*~

~~*~~ .~~*~~
4/13/2009, 3:26 am Link to this post Send Email to Saijen SilverWolf   Send PM to Saijen SilverWolf Yahoo
 
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Re: Well, it's gonna be busy the rest of the month... UGH


It's so good to hear you're having good days! I hope it's what the Gastro gave you, because then it'll last. emoticon

The tapping part is meant to straighten out the energy system, while the set-up (stating the problem and adding the affirmation) points the subconscious to the thing it's supposed to work on. So, if you can, add the tapping, it'll make things work much faster.

*hugs*

All the best, and may the good days continue! emoticon

---
- Firlefanz


4/13/2009, 9:08 am Link to this post Send Email to Firlefanz   Send PM to Firlefanz Blog
 
Saijen SilverWolf Profile
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Re: Well, it's gonna be busy the rest of the month... UGH


I'll try to remember to add the tapping as well. It's not something I do regularly, and have to force myself to remember to do it. You'd think that because it does work, I'd [sign in to see URL].

Today has started off with a BANG, and not in a good [sign in to see URL] least for now.
When I was scheduled for the Gastric Emptying Study this past Wednesday,to take place this coming Thursday, information was extremely hard to come by for the lady doing the scheduling. Let me explain:

I had 2 options of locations to have this study done. The hospital here in my town, or the hospital in the town the doctor is located in, which is only 45 minutes away. I opted for the one here in my town, as it's only 10 minutes away, and should I be feeling not-so-good, it's a much easier drive. Well, when the lady at the doc's called to set it up, she asked if there was anything I needed to do prep-wise. NO ONE had a clue. There is only one person who does Nuclear Medicine in our tiny hospital, and she wasn't there. Still, you'd think that someone who sets up the schedules at the hospital would have a clue what prep, if any, is needed for certain tests. Well, when I went for my Upper GI Ct on Friday, I asked about any prep for the Emptying study, and [sign in to see URL] clue, and the one Nuclear Med person was still out (she'd had some kind of surgery on her eyes). [sign in to see URL] I was told to call first thing this morning to ask my questions. I [sign in to see URL] low and behold, I was nowhere to be found on Nuclear Medicines scheduling. I spoke with the one Nuclear Med person myself. [sign in to see URL] call my doc's office and leave a message for the lady who made the initial call from there. She calls me back 10 minutes or so late and said she called, and yes, I am on the schedule. [sign in to see URL] call the Nuclear Med lady back and tell [sign in to see URL] she calls the woman in Radiology Scheduling, and sure [sign in to see URL]'m on a schedule, but not for Nuclear [sign in to see URL] for a Flouroscope type [sign in to see URL], now we're ALL confused. Nuclear Med lady [sign in to see URL] me call you back, I'm going to just call your doctor and get this all straigtened out. I'll let you know what's going on as soon as I find out. So, here I sit and wait for her to call me back. [sign in to see URL] just called. It is all straightened out now.

[sign in to see URL] what [sign in to see URL] order should have [sign in to see URL] Gastric Emptying Study OR NONnuclear Gastric Emptying Study. The second, of course, is fluroscope and [sign in to see URL] other is nuclear. Mine was supposed to have been Nuclear. [sign in to see URL]'s all set [sign in to see URL] on Thursday morning.
I get a breakfast of scrambled eggs and a biscuit, both have a dye in them. I'll eat those, then a 90 minute series of pictures will be taken as the food is [sign in to see URL] not processed. After that 90 minutes, the percentage of what was processed will determine if there is a problem or not. [sign in to see URL] a mess if there ever was one.
I am really glad I did call [sign in to see URL], I'd be trying to sort this out come Thursday morning, and I'd not be getting the test I truly needed. Talk about a SERIOUS lack of communication. Well, it's settled now.

I hope the start to everyone else's week has gone smoother than mine [sign in to see URL].
Everyone TAKE CARE and have a wonderful day!!!!
 emoticon

---
Blessed Be,
~*~ Saijen ~*~

~~*~~ .~~*~~
4/13/2009, 3:16 pm Link to this post Send Email to Saijen SilverWolf   Send PM to Saijen SilverWolf Yahoo
 


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